Nathan demands our attention

I was chatting with my Mom all morning, telling her about our amazing son-rise journey with Nathan, my 6-year-old autistic son.

Finally Nathan called our attention and requested that we sing “wheels on the bus” with him. Thereafter, he asked for several more songs and Barney story-poems. He would sing or narrate perfectly while watching me do the actions. At times he would join the actions. Of course after every performance, grandma and I applauded as he smiled. Nathan demanded this interaction for an hour. This must be the longest interactive attention span he has shown…so far.

Nathan must have felt like, “Mom, we haven’t had enough son-rise sessions since we moved to Singapore, now sit down and interact with me…bring Grandma along.”

I love son-rise!

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Sleeping and pooping better

Nathan is sleeping and pooping better! I guess a lot has to do with time and energy spent on our son-rise program.

Nathan now enjoys standing on everything, chairs, tables, even the swivel chair. Since his balance is constantly being challenged, he has to put his whole body weight equally distributed on both feet for better stability. This is something his Physical Therapists (since he was 2 years old) have been asking him to do, or for me to help him keep his body weight on both legs to strengthen his muscles. He’s doing this on his own and correcting his body posture making his abdominal muscles to work just as hard. The stronger abdominal muscles must be the main reason why he has better bowel movements.

I believe this is the main reason why he poops almost every day now compared to every 3 or 4 days. His pooping schedule has been good for the past week or two. I hope this is a permanent change. The only other contributing factor I can think about is that I moved his prune juice from after breakfast to after dinner.

Nathan is also sleeping much better. Probably because son-rise takes up a lot of energy and he will get tired at the end of the day and sleep well through the night.

When Nathan was a baby we thought “colic” was the explanation of his sleepless, crying nights. It stopped for a brief period. When he was 3 years old, I remember logging his crying nights. In a month he would average 15 nights of crying, sometimes more. That’s 50% of the time. No wonder I would get just as cranky.

When we went to China for stem cell injections, I remember thinking, “If this will at least improve Nathan’s sleeping pattern, it will be a big improvement.” Crying, sleepless nights was reduced to about 25%.

At age 4 1/2, we opted for anti-epilepsy medication due to his abnormal EEG, also in the hopes of alleviating his autism symptoms. His crying sleepless nights stopped. There were only occasional crying nights. Note: there were no other long-term improvements in terms of autism symptoms. Its been more than a year since medication started and I’ve been feeling maybe his medication dose does not match his body weight anymore. He hasn’t started crying (well, not frequently) but he was getting up in the middle of the night and staying up, singing, for hours and falling asleep when it would be time to get up already. Sometimes he’d be really groggy at school or I would just keep him home. In the end, we decided against increasing medication. When I get brave enough, we’ll work on tapering his medication.

That’s his sleep history. But since this month, Nathan has been sleeping on time, no crying episodes, sleeping all through the night, and waking up in a good mood in the morning. I do hope, this trend continues.

Music Therapy – now also like people behind the instruments

Nathan has always loved music and instruments. Now, he’s starting to show interest in the people behind the instruments. Watch how he touches the pianist’s face. He also verbalizes his wants more.

After drumming with his hands, he asked for drum sticks (I didn’t get that in the video). What was amazing was he resisted mouthing the drum sticks. His drum sticks at home are filled with bite marks. I guess this is were joining his mouthing “ism” is now paying off. Watch also how he gets excited at he goes for the lady’s face.

Making choices

Nathan is really learning to make choices. He used to simply echo the second choice of what you offered him. Tonight he showed how he clearly grasps the concept of choices. He said, “I want to go to the son-rise room…” paused and realized he was sleepy, then continued, “…or go to the bedroom first.”

Practically his first toys

Nathan is 5 and has not really learned to play with toys. He’ll usually mouth it or if it has wheels, he’ll spin it. This week, he’s been asking for the toy animals. My highlight for the week was when he asked for the animals. As I gave it to him, he said, “There are lots if animals at Oji (the nearby zoo) Zoo.”. Then he looked for the hippo and as he found it he said, “Can you open your mouth like a hippo?” I cheered while granting his request. Then he picked up the lion and said, “Can you roar like a lion?” we roared as I cheered! Then he took the tiger saying, “Here comes the tiger.”

He did put those pieces on his lips after but I consider that great progress.

Pointing (Mom)

They say child not pointing is one of the early signs of autism. Nathan never pointed. So I’m a bit surprised at the amount of pointing he did today. He pointed and insisted to go to 7-11 (which I now have to avoid because of gluten-covered fried chicken), he pointed and insisted to touch the fire extinguisher, he pointed and asked for his book from the shelf, he pointed and asked for the next batch of raisins as soon as he gobbled previous batches. It’s as if his “pointing button” has just been turned on.

Another story. Author: Nathan (Mom)

Nathan just created his first story.

As he was playing with his fingers (like you would while singing “incy wincy spider”), he said, “Once upon a time, the spider and a sun….hello spider! The end”.

It’s amazing that he created the story himself and in his story, the sun actually says “hello” to the spider. Whereas “hello” seems like one of the most difficult social skill to teach him.

Praying (Mom)

Sometimes, during bed-time prayers, I can get Nathan to at least say the “Amen” part. He usually leaves me wondering if he’s listen or not.

The other night, as I began prayers with, “Thank you Lord for….,” he continued with, “…the zebra and parrot and lion and elephant and ostrich at the Oji Zoo”. Amazing!

Last night, as he was recalling the melody of an upbeat song he heard during the day, he started filling in the words with those same animals.

We should make next weeks theme about animals!